“My Son Has a Rare Genetic Condition” – Dr. Ogechi’s Postpartum Story

“My son has a rare genetic condition.”

Those are the words Dr. Ogechi Nwoko never imagined she’d say those words.

During pregnancy, she had an unshakable feeling that her child was blind. After birth, small signs were brushed off by doctors and loved ones. But soon, the truth unraveled as he started having siezures: he was diagnosed with a rare genetic condition.

Her postpartum journey wasn’t about recovery—it was about survival, advocacy, and heartbreak. In this powerful episode, Dr. Ogechi shares how she navigated the darkest parts of new motherhood and how she finally made it through.

This is especially for any mom raising a child with a rare diagnosis—and searching for light in the chaos.

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